What is NF?
Neurofibromatosis, pronounced Neuro-fi-bro-ma-to-sis (NF for short), is
a genetic disorder of the nervous system that causes tumors to form on
the nerves anywhere in the body at any time. This progressive disorder
affects all races, all ethnic groups and both sexes equally. NF is one
of the most common genetic disorders in the United States (one in every
3,000 to 4,000 births), even though not many people are familiar with
From Gillian's speech given on July 12, 2000 at an NF, Inc. Congressional
"Most of you know why I'm here, why I care. For those who don't know,
the answer is my brother Aaron. In 1984, when I was a teen and he was
three, Aaron was diagnosed with what was then called peripheral neurofibromatosis,
On May 3, 1996, Gillian Anderson visited Washington, D.C. and addressed
members of Congress urging for more education and funding for NF research
projects. She spoke at an NF, Inc. sponsored Luncheon and her remarks
were entered into the Congressional Record by Senator Spencer Abraham
from Michigan. Her remarks, and an introduction by Senator Spencer Abraham,
can be found in the May 20, 1996 edition of the Congressional Record on
Click here to read Gillian's
Excerpt from an interview
with Gillian in Movieline Magazine, by Virginia Campbell, Dec. '98/Jan.
Gillian: I've worked with various charities, some involving children,
family violence, and multiple sclerosis. But there is one particular charity
I work with the most-Neurofibromatosis.
Virginia: Why that one?
Gillian: My brother has the disease. I make appearances for that
organization all the time. I even addressed Congress about the disease.
Virginia: What was addressing Congress like?
Gillian: It was challenging using my mind in that way and figuring
out what was said. Neurofibromatosis is actually more prevalent than MS,
but there are more stigmas attached to it because itís similar to the
Elephant Man's disease, in those types of tumors, only they may not happen
until the age of 30.
Virginia: Is the research progressing?
Gillian: Yes, and the research on NF has helped in a lot of other
areas as well. What is amazing is that a lot of fans donate money to this
cause for my birthday or Christmas or my daughter's birthday. It's incredibly
generous of them.
Virginia: Well since the holidays are coming up, how can somebody
who wants to give a donation go about doing that?
Gillian: There's a web site where you can do it. The address is
How to Help
In an online
chat (May 15, 2001), Gillian offered some simple suggestions on how
"There's also an NF, Inc. website - www.nfnetwork.org.
Donations can be made through that site. Or, you can do what other people
do, which is organize some kind of fundraiser. You can bake cookies and
sell them on the street corner and send the money in to NF, Inc.! :)"
Gillian's reply when asked, "Is it OK to use your name to try and
raise funds in an NF event?" - "If it's simply saying, 'Please
support the charity that Gillian supports,' then that's just fine. That's
If you're planning to shop at Amazon.com, please use this
link (or any other Amazon links throughout our site) so that the referral
fees will benefit Neurofibromatosis, Inc.
Join iGive.com for your online shopping (400+ stores). NF, Inc. is listed as cause number 7859.
For lots of other ways to help, click here.
Thank you very much for your support!
Links & Resources
To learn more about Neurofibromatosis:
Gillian is an Honorary Spokesperson of the NF Network. (aka: The Neurofibromatosis Network).
Just Ask Reggie Bibbs:
Visit his awesome web site!